The programme explains what it is like to live life with a brain tumour and is presented by Julia Sommerville, who herself had been diagnosed and successfully treated for a brain tumour some twenty-five years ago.
It follows the stories of two people in particular, firstly Phoebe, a six year old girl who has had an operation to remove a malignant brain tumour. Phoebe and her parents discuss the effects that both diagnosis and treatment have had on Phoebe and her family. Secondly is Chris, a twenty-nine year old man who had surgery to remove a brain tumour two years ago. Since then, he has had to go for MRI scans every four months to assess if his tumour has started to grow back. The tension and uncertainty that comes with being locked in a cycle of scans and results meetings naturally cause a great deal of distress for Chris and his partner. This state of anxiety has been named as ‘scanxiety’.
The work of brainstrust has helped Phoebe, Chris and many others through the journey that people with brain tumours find themselves on. They are the only charity in the UK offering personalised support for people with brain tumours, their family and carers, 24 hours a day, 7 days a week. As well as being available 24/7, the charity also arrange regular meet-ups for patients and carers, giving people opportunities to discuss their experiences with others and also to find mutual support.
If you are interested in finding out more about brainstrust please visit their website at www.brainstrust.org.uk or contact them directly via email: email@example.com or phone: 01983 292 405. They can also be found on Twitter and Facebook.
As well as being available on the iPlayer, the programme will also be shown on BBC2 at 1pm on the 14th December.